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Dr. Juan Antonio Avina-Zubieta
Biography
Dr. Antonio Aviña-Zubieta completed medical school (1989) and his internal medicine training (1990-91) at the University of Guadalajara before pursuing a rheumatology fellowship at the Autonomous National University of Mexico (1991-93). After his formal training in Mexico, Dr. Aviña undertook a Clinical Research Fellowship at the University of Alberta (1993-95), and subsequently completed a Master’s Degree in Experimental Medicine at the same university (1997). He returned to Mexico City in 1998 where he established the first clinical epidemiology research unit at La Raza National Medical Center. Here, Dr. Avina was appointed as its first head, in addition to serving as an active staff member within the department of rheumatology at the same hospital.
In 2004, Dr. Aviña received a scholarship from both the National Council for Science and Technology (CONACyT-MEXICO) and the Mexican Institute of Social Security to pursue his PhD at the University of British Columbia (UBC), which he completed in 2010. Following graduation, Dr. Aviña began a faculty appointment as an Assistant Professor with the Faculty of Medicine at UBC, and was granted a Network Scholar research training award from the Canadian Arthritis Network-The Arthritis Society to start his career as a new investigator. He was also named the first ever BC Lupus Society Scholar (2010), a title he continues to hold. Dr. Aviña currently mentors one PhD student, three master students, and six clinical trainees.
Dr. Aviña’s current research interests include the disease burden of systemic autoimmune rheumatic diseases (SARDs) including cardiovascular disease, costs, overall and cause specific mortality in individuals with SARDs. In order to conduct his research, Dr. Aviña has put together an administrative data cohort that includes all individuals in British Columbia with SARDs. This data includes all hospital, outpatient physician billing claims, all dispensed medications, vital statistics information, and cancer registry. It also includes laboratory test results and self-report data from survey, unique features of Dr. Aviña’s cohort that are not found in any other similar cohort across the world. Access to this one of a kind data set will allow Dr. Aviña to explore research questions that were not feasible before, leading to a deeper understanding of these diseases, the development of new strategies to prevent SARDs and their associated complications, as well as the creation of tools to help both patients and health care providers better manage SARDs. Dr. Aviña has co-authored more than 115 publications in refereed journals, book chapters, and peer reviewed abstracts, and has given presentations at a number of national and international conferences. To recognize his research program, Dr. Aviña was awarded a Michael Smith Foundation for Health Research Scholar award for the maximum term of 5 years (2014-19). Currently, he is also the lead of the SARDs component of a team grant funded by the Canadian Institutes of Health Research (CIHR).
5591 No. 3 Road Richmond British Columbia V6X 2C7 Canada
Dr Claire Ellen Barber
Biography
Dr. Barber completed an honors degree in microbiology and immunology (2002), a medical degree (2006), and internal medicine training (2009) at Dalhousie University in Halifax, Nova Scotia. She then pursued subspecialty medical training in rheumatology at the University of Toronto (2011). She then moved to Calgary to pursue additional research training in epidemiology and graduated with a PhD in Epidemiology from the Department of Community Health Sciences at the University of Calgary in 2016.
During her PhD she was supported by continuous funding from Alberta Innovates Health Solutions and she was also awarded a prestigious Vanier Canada Graduate Scholarship. Her PhD research was also supported by CIHR funding. For her PhD thesis she developed the first set of quality indicators (QIs) for cardiovascular care for RA.
Dr. Barber has developed nationally recognized expertise in quality measure development and over the last 5 years has been working extensively with the Arthritis Alliance of Canada to develop a framework for evaluating models of care for inflammatory arthritis (see key publications below).
In October 2015, Dr. Barber was hired as an assistant professor in the Department of Medicine, Cumming School of Medicine at the University of Calgary. She is also affiliated with the O’Brien Institute for Public Health, the McCaig Institute for Bone and Joint Health and Arthritis Research Canada.
Key Publications:
- Brophy J, Marshall DA, Badley EM, Hanly JG, Averns H, Ellsworth J, Pope JE, Barber CE. Measuring the Rheumatology Workforce in Canada: A Literature Review. J Rheumatol. 2016 Apr 1. pii: jrheum.151174. URL: http://www.ncbi.nlm.nih.gov/pubmed/27036382
- Barber CE, Marshall DA, Mosher DP, Akhavan P, Tucker L, Houghton K, Batthish M, Levy DM, Schmeling H, Ellsworth J, Tibollo H, Grant S, Khodyakov D, Lacaille D; Arthritis Alliance of Canada Performance Measurement Development Panel. Development of System-Level Performance Measures for Evaluation of Models of Care for Inflammatory Arthritis in Canada. J Rheumatol. 2016 Mar;43(3):530-40. URL: http://www.jrheum.org/content/43/3/530
- Barber CE, Patel J, Woodhouse L, Smith C, Weiss S, Homik J, LeClercq S, Mosher D, Christiansen T, Squire Howden J, Wasylak T, Greenwood-Lee J, Emrick A, Suter E, Kathol B, Khodyakov D, Grant S, Campbell-Scherer D, Phillips L, Hendricks J, Marshall D. Development of Key Performance Indicators to Evaluate Centralized Intake for Patients with Osteoarthritis and Rheumatoid Arthritis. Arthritis Research & Therapy 2015,17:322. URL: http://arthritis-research.com/content/17/1/322
- Barber CE, Marshall D, Alvarez N, Mancini GB, Lacaille D, Keeling S, Avina-Zubieta JA, Khyodyakov D, Barnabe C, Faris P, Smith A, Noormohamed R, Hazlewood G, Martin LO, Esdaile JM. Development of Cardiovascular Quality Indicators for Rheumatoid Arthritis: Results from an International Expert Panel Using a Novel Online Process. Journal of Rheumatology. 2015, 42(9):1548-55. URL: http://www.ncbi.nlm.nih.gov/pubmed/26178275
- Barber C, Smith A, Esdaile J, Barnabe C, Martin L, Faris P, Hazlewood G, Noormohamed R, Alvarez N, Mancini GBJ, Lacaille D, Keeling S, Avina-Zubieta A, Marshall D. Best Practices for Cardiovascular Disease Prevention in Rheumatoid Arthritis: A Systemic Review of Guideline Recommendations and Quality Indicators. Arthritis Care & Research 2015; 67(2): 169-179. URL: http://onlinelibrary.wiley.com/doi/10.1002/acr.22419/epdf
- Barber C*, Lacaille D, Fortin PR. A Systematic Review of Validation Studies of the use of Administrative Data to Identify Serious Infections. Arthritis Care Res (Hoboken). 2013 65(8):1343-573. URL: http://onlinelibrary.wiley.com/doi/10.1002/acr.21959/epdf
Cheryl Barnabe
Biography
Dr. Cheryl Barnabe is an Assistant Professor in the Departments of Medicine and Community Health Sciences in the Cumming School of Medicine at the University of Calgary. She is a CIHR New Investigator and holds a CIHR Foundation Scheme Grant for her research program that is addressing arthritis care disparities for Indigenous populations in Canada. With a multidisciplinary team, collaborative and transformative health research initiatives that benefit Indigenous patients and communities, and strengthen care systems in their capacity to provide patient-centered care, are performed.
3330 Hospital Dr NW Calgary AB T2N 4N1 Canada
Dr. Sasha Bernatsky
Lina Burgos Liz
Health Research Innovation Centre, 3280 Hospital Drive NW Calgary AB T2N 4Z6 Canada
Ms Gisele M. Carriere , MA
Biography
Gisele M Carriere is a member of the Londitudinal Health Administrative Data (LHAD) research team within the Health Analysis Division of Statistics Canada. Gisele primarily conducts health services utilization research using administrative health data, with a focus on utilization among the Aboriginal identity populations. Gisele has most recently been involved in several cancer-related research projects that use different combinations of linked administrative data.
Gisele completed a Masters of Arts ( Experimental Psychology) degree at Simon Fraser University in 1991 after completing her research to develop measures of physical indices of cognition.
Statistics Canada Western Region and Northern Territories 600 Library Square Tower Vancouver BC V6B 6C7 Canada
Jeffrey R Curtis
Notes
Dr. Jeffrey Curtis is an Associate Professor of Medicine in the Division of Clinical Immunology and Rheumatology at the University of Alabama at Birmingham (UAB). He is the Co-Director of the UAB Center for Education and Research on Therapeutics (CERTs) of Musculoskeletal Disorders, which has a major emphasis on evaluating the safety and comparative effectiveness of medications for rheumatic diseases. Additionally, as the Director of the UAB Arthritis Clinical Intervention Program, he leads the clinical trials unit for the rheumatology division at UAB, with a particular focus on rheumatoid arthritis (RA). He is the Co-Director of the UAB Pharmacoepidemiology and Pharmacoeconomics Research (PEER) Unit. He also is an Associate Scientist for the UAB Center of Metabolic Bone Disease.
Dr. Curtis received a Medical Degree (MD) and a Master of Public Health (MPH) degree from Oregon Health & Sciences University in Portland. He subsequently completed a residency in internal medicine at Oregon Health & Science University and a fellowship in rheumatology at UAB. He received his Master of Science (MS) degree in epidemiology at the Harvard School of Public Health. He is board-certified in rheumatology.
The evaluation of the efficacy, comparative effectiveness, and safety of the medications used to treat rheumatoid arthritis and other forms of inflammatory arthritis are among Dr. Curtis’s research interests. He served on the Core Expert Panel for the ACR’s 2008 and 2012 Recommendations for the Use of Nonbiologic and Biologic Disease Modifying Antirheumatic Drugs in RA. He currently is the Deputy Director for a collaborative project between the FDA, the Agency for Healthcare Research and Quality (AHRQ), and a number of academic centers studying the safety of biologic agents using multiple, pooled national data sources.
Dr. Curtis also studies risk factors for and outcomes of osteoporosis, particularly among men and non-Caucasians. He was a member of the ACR’s task force to update recommendations for the management of glucocorticoid induced osteoporosis (GIOP). He also served on the ASBMR Task Force on Atypical Subtrochanteric and Diaphyseal Fractures.
Dr. Curtis is a member of the American College of Rheumatology (ACR), the International Society for Pharmacoepidemiology (ISPE), and the American Society of Bone and Mineral Research (ASBMR). He has authored more than 150 peer-reviewed articles and book chapters. He is on the editorial board for Pharmacoepidemiology and Drug Safety (PDS) and Arthritis Care and Research (AC&R).
510 20th Street South FOT 802D Birmingham AL 35294 USA
Ms. Bryany Denning , M.Sc.
P.0.Box 1320, 5022-49th Street, 6th Floor Yellowknife Northwest Territories X1A 2L9 Canada
Ms. Wendy Denise Doig
Dr. Caroline Doyon
Biography
Caroline Doyon is an epidemiologist for the Centre for Surveillance and Applied Research of the Public Health Agency of Canada (PHAC). She has a Bachelor’s degree in kinesiology, a Master’s degree in Exercise Sciences from Université de Sherbrooke and pursued doctoral studies in kinesiology at Université Laval. Since 2020, she is leading the national surveillance of musculoskeletal conditions, including arthritis and osteoporosis, within PHAC’s Canadian Chronic Disease Surveillance System (CCDSS).
The CCDSS monitors trends as well as the impacts of various chronic conditions in the Canadian population using linked administrative data from every province and territory to estimate the incidence and prevalence of chronic conditions, all-cause mortality and in the case of arthritis, the use of health services for arthritis.
PHAC, 785 Carling Ave Ottawa ON K1S 5H4
Lihi Eder
Centre for Prognosis Studies in the Rheumatic Diseases Toronto Western Hospital Toronto ON
Dr. Debbie Feldman
DR. Paul R. Fortin
Biography
Dr. Fortin obtained his medical degree from ‘Université Laval’ in Quebec City and graduated from McGill University in Rheumatology. He then obtained a Master’s in Public Health from Harvard University School of Public Health. He followed three years of special training in clinical epidemiology as a Harvard post-doctoral research fellow under the direction of Dr. Matthew H. Liang at the RobertBreckBrighamMulti-PurposeArthritisCenter of the Brigham and Women’s Hospital. He returned as an Assistant and then Associate Professor of Medicine at McGillUniversity and to the Montreal General Hospital/McGill University Health Centre and Research Institute between 1992 and 2000, where he was funded uninterruptedly by operating grants from The Arthritis Society (TAS) and/or the Canadian Institutes of Health Research (CIHR). Dr. Fortin joined the staff of Toronto Western Division/University Health Network (UHN) and Research Institute in 2000 as a Clinician Scientist and Director of Clinical Research for the Arthritis Centre of Excellence. He became Full Professor of Medicine at the University of Toronto in 2007 and held cross-appointments as staff at the Hospital for Sick Children and as Associate Professor at the Institute of Medical Sciences and the Department of Health Policy, Management and Evaluation of the University of Toronto. In August 2011, he moved to Quebec City, Canada and became Full Professor with tenure at Université Laval and Clinicial Researcher at the ‘Centre de Recherche du CHU de Québec’. In February 2012, he was appointed Assistant Director for Clinical Research at the research centre.
Dr. Fortin has been working on a better understanding of the bio-psycho-social impact of chronic rheumatic diseases such as systemic lupus erythematosus (SLE), the antiphospholipid antibody syndrome (APS), systemic autoimmune rheumatic diseases (SARD), osteoarthritis and rheumatoid arthritis. He is particularly interested in developing interventions for the treatment of SLE, APS and SARD.
His methodological interests cover the development and validation of health status measures and other clinical tools such as measures of disease activity or damage in SLE. His other methodological interests include the development of risk profiles for arterial or venous thrombosis in APS, the testing of treatments of disease activity or cardiovascular disease in SLE, or the validation of biological markers in osteoarthritis.
In 1995, he created the Canadian Network for Improved Outcomes in SLE (CaNIOS) with the specific goal of running a multi-centre, randomized, and controlled Study of Methotrexate in Lupus Erythematosus (SMILE). CaNIOS brought together many lupus experts who, despite their limited individual cohorts, were able to pool information for the completion of SMILE. CaNIOS is now conducting several CIHR and TAS funded national studies, including the recently funded project on ‘Empowering Patients as Active Partners in Their Care: Lupus Interactive Navigator (LIN)’, ‘The Dissemination of the Lupus Health Passport’, ‘Health Improvement and Prevention Program for Persons with SLE’ (HIPP study), and ‘Lupus Nephritis New Emerging Team’ (LuNNET), ‘
Dr Fortin received the Kirkland Scholar Award in 2007, and he received the prestigious Distinguished Senior Research Investigator Award from The Arthritis Society of Canada. In 2010, he received the Hope Award from the Lupus Ontario to recognize his outstanding leadership in improving the lives of people with lupus. In July 2012, he received a tier 1 Canada Research Chair in Systemic Autoimmune Rheumatic Diseases.
Notes
Centre de recherche du CHU de Québec CHUL Québec QC G1V 4G2 canada
Sonia Jean , PhD
945, avenue Wolfe Québec Qc G1V 5B3 Canada
Jacek Kopec , MD, MSc, PhD
Biography
Dr. Jacek Kopec is a professor in the School of Population and Public Health, UBC, and Head, Division of Epidemiology, Biostatistics and Public Health Practice. He is also a Senior Scientist at Arthritis Research Canada and is affiliated with the UBC Department of Medicine, Centre for Hip Health and Mobility, Institute for Work and Health in Toronto, and NRG Oncology in the US.
Dr. Kopec earned his MD degree from the Pomeranian Medical University in Poland and his PhD from the Department of Epidemiology and Biostatistics, McGill University. His scholastic achievements have been recognized with the National Health Research Scholar Award from Health Canada and the Senior Scholar Award from the Michael Smith Foundation for Health Research.
Dr. Kopec has published over 100 papers in peer-reviewed journals. His main areas of research are musculoskeletal epidemiology, quality of life studies, and population health. Dr. Kopec has taught courses in epidemiology, measurement methods and survey design. He has supervised or co-supervised more than 30 graduate students.
Dr. Bindee Kuriya
Biography
Mount Sinai Hospital 60 Murray Street, Room 2-224 Toronto Ontario M5T3L9 Canada
Dr. Diane Lacaille
Biography
Diane Lacaille MD MHSc FRCPC
Diane Lacaille is a Professor in the Division of Rheumatology at the University of British Columbia, and a senior scientist at Arthritis Research Canada, in Vancouver. She is affiliated with Vancouver Hospital and Health Sciences Center and she has a rheumatology practice in Richmond, BC. She holds the Mary Pack Chair in Arthritis Research from UBC and The Arthritis Society of Canada. She completed medical school and internal medicine training at Mc Gill University in Montreal, and her Rheumatology training and a Master’s in Health Sciences, clinical epidemiology, at the University of British Columbia. Her research focuses on two areas: 1) Studying the impact of arthritis on employment and preventing work disability. 2) Evaluating the quality of health care services received by people with RA, using a population-based cohort of RA for the province of BC. Her research has been supported by peer reviewed grants from the Canadian Institute for Health and Research, the Canadian Arthritis Network, The Arthritis Society of Canada and the Canadian Rheumatology Association. She was awarded the Queen Elizabeth II Diamond Jubilee medal in 2013 for her research contributions.
5591 No 3 Rd Richmond BC V6X 2C7 Canada
Dr. Deborah M Levy
Biography
I am a pediatric rheumatologist at SickKids Hospital, with a primary interest in childhood-onset SLE. I am utilizing administrative health databases in my research examining the long-term outcomes of childhood-onset SLE in a population-based cohort from Ontario. I am also interested in pediatric rheumatologic disease surveillance across Canada, and the long-term burden (throughout the lifespan) of chronic disease that has its onset in childhood.
Hospital for Sick Children Division of Rheumatology Toronto ON M5M 2C8 Canada
Dr. Lisa Lix
Biography
Dr. Lisa Lix is Professor and Manitoba Research Chair and Director of Data Science within the George and Fay Yee Centre for Healthcare Innovation at the University of Manitoba. She was Centennial Chair in the School of Public Health at the University of Saskatchewan prior to this (2008 – 2012).
Dr. Lix’s areas of research expertise include health services research methods, statistical methods for evaluation of the quality of administrative health databases, the analysis of repeated measures and longitudinal data, and robust statistical methods for patient-reported outcomes. She collaborates widely on projects about population health and the association between chronic disease and quality of life. Dr. Lix has extensive experience working with administrative health databases from multiple provinces and this has provided her with unique insights into new methodological research opportunities. She is currently leading a three-year Canadian Institutes of Health Research (CIHR)-funded project that will conduct comparative investigations of the quality of physician billing claims databases from Newfoundland and Labrador, Nova Scotia, Manitoba, and Saskatchewan.
The excellence of Dr. Lix’s research program has been recognized through the following provincial and national awards: Manitoba Research Chair (2012 – 2017), University of Saskatchewan Centennial Chair (2008 – 2012), Saskatchewan Health Research Foundation Top New Socio-Health Investigator (2009), and CIHR New Investigator Award (2006 – 2011).
S113-750 Bannatyne Avenue Winnipeg MB R3E 0W3
Dr Deborah Marshall
Biography
As a Canada Research Chair, Health Services and Systems Research, Dr Marshall focuses her research program on methods to improve the effectiveness and efficiency of health care services. This includes measurement of patient preferences, cost-effectiveness analysis, and dynamic simulation systems modeling of health care delivery. She is a founding co-investigator of the innovative Patient and Community Engagement Research (PaCER) Program at the University of Calgary which trains patients to design and conduct health research, using specific adapted methods of qualitative inquiry.
She holds a faculty appointment as a Professor at the University of Calgary (Department of Community Health Sciences and Department of Medicine) and also holds the Arthur J.E. Child Chair of Rheumatology Outcomes Research in the McCaig Institute of Bone and Joint Health. She is the Director of Health Technology Assessment at the Alberta Bone and Joint Health Institute, a Senior Scientist of the Arthritis Research Canada, and a member of the O’Brien Institute of Public Health. Dr Marshall is the recipient of the Distinguished Achievement Cochrane Award for Research recognizing her outstanding success in research grants, publications and student mentorship, and the Award for Early Career Excellence in Graduate Education from the University of Calgary.
Dr. Marshall’s academic training includes a PhD from the School of Public Health at the University of North Carolina, Chapel Hill as an Alberta Heritage Foundation for Medical Research Scholar, an MSc in Health Services Research (University of Alberta) and a BSc in Biochemistry (University of Toronto).
She has experience in government (national technology assessment agencies in Canada and Sweden), academia and pharmaceutical and diagnostics industry research settings in Canada, the United States, and Europe. She was previously Vice President, Global Health Economics and Outcomes Research at i3 Innovus, managing health economic projects globally for diagnostic and pharmaceutical products.
Dr. Marshall’s research program, funded through grants from the Canadian Institutes for Health Research, Genome Canada, United States National Institute of Health (NIH), the Canadian Arthritis Society, and the Ontario Institute for Cancer Research is focused on measuring preferences using conjoint analysis, personalized medicine, cost-effectiveness analysis and health system modeling. She was the Project Lead for a NIH Program Grant on Translational and Policy Research in Personalized Medicine, which develops evidence to assess how personalized medicine can improve health outcomes.
Dr. Marshall is an active member of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) as the Past President of the Board of Directors, the Chair of the Dynamic Simulation Modeling Applications in Health Care Delivery Research Task Force and as a member of the Patient Preferences Special Interest Group and co-author of related ISPOR Task Force Reports. She led the development of the Guidelines on Budget Impact Analysis for the Canadian Patented Medicine Prices Review Board. She also serves on the Board of Directors for Health Technology Assessment International (HTAi) and the Editorial Boards of the International Journal for Technology Assessment in Health Care and The Patient.
University of Calgary 3280 Hospital Drive NW Calgary AB T2N4Z6 Canada

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