Using a bilingual online survey, we ascertained Canadians’ views about using administrative databases and other publicly-collected data for health research. Respondents were generally supportive (by the end of the survey, 93% felt positively about this work), but wanted to learn more about the data access and security measures, including the role of data stewards. Our findings suggest that more education may increase public trust and support for this important research.

Document Link: https://acrabstracts.org/abstract/canadians-views-about-using-big-data-in-health-research-from-a-national-online-survey-a-partnership-of-patient-consumers-and-researchers/