Canadians’ Views about Using Big Data in Health Research from a National Online Survey: A Partnership of Patient Consumers and Researchers

File Size60.7 KiB
DateOctober 12, 2018
AuthorNatalie McCormick, Clayon Hamilton, Cheryl L. Koehn, Kelly English, Allan Stordy, Linda Li
Using a bilingual online survey, we ascertained Canadians’ views about using administrative databases and other publicly-collected data for health research. Respondents were generally supportive (by the end of the survey, 93% felt positively about this work), but wanted to learn more about the data access and security measures, including the role of data stewards. Our findings suggest that more education may increase public trust and support for this important research.

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